Survey: Only 29% of People with RLS Say Sleep Disorder Is Controlled on Current Treatment Plan
A new survey from Health Union, which creates condition-specific online patient communities, finds that people living with restless legs syndrome (RLS) are often dealing with a confusing patient journey, from diagnosis to relationships with the healthcare professionals to treatment experience. Health Union’s Sleep Disorders In America survey illuminates the perspectives and experiences of people living with RLS and other types of sleep disorders, including insomnia, narcolepsy, and sleep apnea.
Of the Sleep Disorders In America survey respondents who answered RLS-specific questions and were officially diagnosed with the condition, 40% said they have primary RLS, meaning the cause is unknown or unrelated to a separate condition or symptom. Another 19% have secondary RLS, which is caused by another condition, while the other 41% were uncertain about the type of RLS they have.
Diagnosing the condition can sometimes be confusing for a few reasons, including not understanding the full extent of the problem. For example, more than a third of diagnosed respondents went at least two years between first experiencing symptoms and meeting with a healthcare professional to discuss those symptoms.…
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